Holiday stress can lead Alzheimer’s patients and those with dementia to go missing

ATLANTA — Holidays are a time for families and friends to gather, but for older people with Alzheimer’s disease and other dementias, it can cause so much stress and confusion that they could be in danger of what experts calls wandering.

“I would say around the holiday time is the biggest challenge for people with dementia,” said Kim Franklin, senior manager of programs and services at the Georgia chapter of the Alzheimer’s Association. “Schedules are changing, people are traveling, families are coming together and friends are coming over. There’s a lot of chaos going on and that can cause a person to wander. They want to get away. It’s hard for them to process what’s happening.”

The Alzheimer’s Association reports 72% of dementia patients who wander are found alive by the next day. Alerting 911 as soon as the person goes missing is critical. The odds of survival decrease as more time passes.

Angel Alonso, president of Georgia Emergency Search and Recovery based in Gwinnett County, said the vast majority — between 60% and 70% — of the 30 to 40 calls the nonprofit received last year involved people with the disease.

The GESAR is a volunteer-driven organization that works with law enforcement to find people who have gone missing, including children, people with Alzheimer’s and dementia, and people lost during major disasters.

“We get so many Alzheimer’s calls,” said Vice President John Clark, who is also volunteer instructor with the Georgia Chapter of the Alzheimer’s Association. For caregivers and loved ones, a relative who goes missing is devastating.

Two of Clark’s grandparents had dementia, so he gravitated to search and rescue to help other families and caregivers keep their loved ones safe. He’s consulted with police departments across metro Atlanta on the best ways to find people with Alzheimer’s.

Alzheimer’s disease and other dementias can cause people to lose their ability to recognize people and places that are familiar.

According to the Alzheimer’s Association there are often warning signs that a person might wander. Six in 10 people with dementia will wander during the course of the disease.

That includes people returning from a regular walk or drive later than usual. Or they may talk about fulfilling former obligations, such as going to work or talk about going home even when they’re at home. Sometimes they become restless and pace or make repetitive movements.

Clark recounted one call for help when a family reported a missing relative, but they insisted she couldn’t have gone far because of a bad knee that limited her to walking no further than the mailbox. Searchers found the missing woman 7 miles from home.

Even those who have never shown an interest in wandering might start without warning.

Dan Goerke is fortunate. His late wife, Diane, who was diagnosed with Alzheimer’s in 2012, once went missing from the car of a caregiver.

The caregiver had stopped for an errand. Diane had waited alone in cars as people ran errands before. But this time, when the caregiver returned, Diane was gone but her seat belt was still fastened.

“It was like she disappeared into thin air,” said Goerke, who said he doesn’t blame the caregiver. Fortunately, she was found uninjured and nearby a short time later that same day.

Goerke said it’s hard for caregivers to always be on guard for wandering. “We have so many things to juggle that’s not necessarily at the top of our minds. We have to manage medications, take them to doctor’s appointments, cook meals and taking care of things day to day,” he said.

Clark said when searching for someone with dementia, one of the keys is to know what the person was like before their diagnosis. Often their long-term memories are still strong. They once found a woman who walked out of her home and went to where she used to shop and to her old job, although it had closed.

Recently, GESAR unveiled a new tool to search for missing people: Maverick.

An 8-month-old chocolate Labrador retriever, Maverick is in training to be part of the GESAR search and research team that will track missing people, including wandering dementia patients in metro Atlanta.

In cases involving children and people with dementia, a dog’s personality can also be an asset. Labs like Maverick are friendly and affectionate, not imposing or threatening like some other breeds — and less likely to scare the person who is lost.

Canines can be used in searches in both rural and urban areas.

“He’s an asset,” said Maverick’s handler, Carmen Alonso. “His nose can pick up odors and track where a person has been that we might not think to go that direction.”

At the Cobb County Police Department, Public Information Officer Sgt. Eric Smith said if dogs are needed to search for a wanderer they call the sheriff’s department, which has bloodhounds. “They’re not apprehension dogs so there’s little or no likelihood of a bite,” he said.

Technology can also help, Smith said. Searchers can use drones and families can install technology on a person’s car to help locate it or use other kinds of trackable devices including on their phone.

“We get so many Alzheimer’s calls,” said Clark, who is also a volunteer instructor with the Georgia Chapter of the Alzheimer’s Association.

Most cases they’ve worked on have had favorable results, according to the Georgia Emergency Search and Recovery organization.

No two searches are the same, said Sgt. Jeremy Blake of the Cobb County Sheriff’s Office.

“When responding to calls for a missing person, the response is different than that of a fleeing suspect,” he wrote in an email. “The K-9s that are used to track missing persons are not trained in the apprehension of suspects. … Often times, if the K-9 cannot locate the missing person, they can provide officers with a more accurate direction of travel than they may previously had.”

Nearly 7 million U.S. residents age 65 and older were living with Alzheimer’s according to the most recent Facts & Figures report. Of those, more than 188,000 Georgians ages 65 and older also have been diagnosed with the disease, according to the Alzheimer’s Association Georgia Chapter.

Facts on wandering

There is a better chance of being found in urban environments because of a higher probability of a “good Samaritan” stepping in.

Wanderers may give no forewarning. Often those with memory issues wander away during activities they’ve done safely in the past, such as shopping or sitting on a front porch.

Some people who still drive can become disoriented and drive for miles away from home.

According to the Cobb County Sheriff’s Office, on average, half the calls for missing persons involve the elderly or someone with disabilities.

If a loved one with Alzheimer’s or dementia disappears

Call 911 as soon as possible.

Have a photograph available for first responders and an article of clothing to provide a scent for search dogs.

Sharing what the missing person liked to do in prior years can be a key: Did they have a job they went to every day? Did they like to fish or go to a certain spot?

Searchers will need to know the last time the person was seen to help determine how far a person might have wandered.